Ovacom

14th Annual Ovarian Cancer National Alliance Turning Promise into Action Conference

2011-07-12T20:51:00.000-04:00

I’m back from the 14^th Annual Ovarian Cancer National Alliance Turning Promise into Action conference, my second one....And yes I'm already planning next year’s. The Doctors gave out excellent and easy to understand info on the latest breakthroughs in ovarian cancer and ovarian cancer research. I met some of the most knowledgeable, and inspiring women. NED the band was awesome. As we danced and sang the night away, I fell in love with another woman’s Gyn Oc.

Take Action | Ovarian Cancer National Alliance

2011-05-09T15:21:00.000-04:00

Take Action Ovarian Cancer National Alliance

What Cancer Cannot Do

2011-03-31T21:19:00.000-04:00

Cancer is so limited...
It cannot cripple love.
It cannot shatter hope.
It cannot corrode faith.
It cannot eat away peace.
It cannot destroy confidence.
It cannot kill friendship.
It cannot shut out memories.
It cannot silence courage.
It cannot reduce eternal life.
It cannot quench the Spirit.
Author, Unknown

5yr Cancerversary

2011-03-18T22:45:00.002-04:00

For the past several weeks, I thought about my approaching cancerversary with a combination of reverence, anxiety, grief, delight, and liberation. Sounds crazy, huh? Well welcome to my “new normal” the life of a cancer survivor. When you are a cancer survivor, you have this date engraved in your memory like you birthday, wedding day, September 11, the day Marvin Gaye died. You'll never forget where you were or what you were doing when you heard the words, "You have cancer." For me that date is March 17, 2006, a kind of new birthday. My life as I knew it would never be the same again, no matter the outcome. I never planned on becoming an ovarian cancer survivor because, like most people, I never planned on having ovarian cancer. When you're a young woman, getting on with your life, cancer let alone ovarian cancer is the last thing on your mind.

Although this cancer journey has been long and some times frightening, along the way I have met many amazing women who I am proud to call sister-friends. Today I will spend time quietly remembering some of those women who didn't make it this far in their journey. We are all at different stages of our cancer journeys, but united in our desire to be there for each other through this rollercoaster ride our lives have now become. From the time I first heard the words "you have cancer", I have been surrounded with love and support. Support I am still humbled by today. From prayers, meals, cards, to those who would sit quietly with me in the chemo room...I have loved it all.

This year I have reached the quintessential 5-year mark where cancers survivors are considered “out of the woods”. (Whew) What helps me find meaning in all of this is a deep desire to give something back, to help others with a diagnosis of cancer. I have a story that needs to be shared so that others will not feel alone in their fight against cancer. So armed with the lessons I have learned from my cancer experience, I look to the future and vow to make the best life I can for myself and those I care about and in the process to hopefully touch the lives of others with some of the compassion and love I was given. The more I do, the more I want to do.

Happy 2011!

2011-01-01T20:22:00.000-05:00

I love, love, love the start of a new year! It's something about getting a chance to set new goals/intentions and getting a chance to reflect on the previous year’s good, bad and ugly makes me feel fortunate! And a little self reflection is always good. So here are some of my goals/intentions for 2011 (in no particular order):
• Start an exercise program and stick with it.
• Eat healthier…more beans, greens and fruits.
• Read fifty good books.
• Give a little more of my time to….
You get the idea!

Happy Birthday to Me!!

2010-10-14T06:20:00.001-04:00

I always think of birthdays as personal holidays, and I always take a vacation day from work - that's one of my birthday gifts to myself. Since my parents have both passed I am usually the one who celebrates my birthday telling every and anyone who will listen that “It’s my birthday!” and having cake or cupcakes.
So HELL yeah I’m celebrating! I am another year older, wiser, and more grateful. So…today I’m going to be around people who matter to me, have some cake, maybe treat myself to a massage and a new pair of shoes or two or three who knows (tee hee hee)...It’s my birthday! It’s my birthday!

Do I smell CAKE or Piece of Cake!!!

New To-Do List

2010-09-24T23:48:00.000-04:00

Sing.
Smile at strangers.
Keep learning.
Notice kindness.
Eat ice cream.
Hope.
Count my blessings.
Laugh.
Love.
Love some more.

Happy Anniversary Honey!

2010-09-20T20:33:00.000-04:00

I just wanted to let the world know what a wonderful husband I have. So….to my honey, Do you realize how much you mean to me? You always give so much of yourself unselfishly. You always care and always try to make things better. You came into my life at a time when I had given up on love and I thought all was lost. Honey, I love you exactly the way you are. You are my gift from God, and although our lives are not picture perfect, as no one’s is, I wouldn’t trade you for the world. I just want you to know I respect you greatly for the things you have accpmlished and the way you've chosen to live your life. I thank you for being the greatest man on this earth, and I thank God for giving you to me. You allow me to be me with no string attached. Your love strengthens me every day. You fill my heart with love. We have many years to look forward too. Whatever storm is upon us, we will weather it together with God and united in love. I love you, don’t ever forget that. Always know that your love for me gives me strengthen every day.

Advocacy

2010-09-17T18:22:00.000-04:00

I was diagnosed with stage IIa ovarian cancer in March 2006. After the fog cleared and I began adjusting to my new life-- as an ovarian cancer survivor --in my opinion you are always a survivor. I began to look for ways to deal with the new me. Advocacy has given me a tool to continue fighting this disease, not only for me but for those who are fighting, those who have lost their battles and women who may be at risk.

Speaking out works - by getting involved, breast cancer survivors have increased funding for breast cancer that has led to new treatments and tests that are saving more lives than ever before. We are doing the same for ovarian cancer. As advocates for ovarian cancer we are educating women about ovarian cancer, changing public policy, and making a difference!

Through this thing called ovarian cancer I have had the opportunity to meet and become friends with some of the most courageous and impressive women on the face of this earth. Learn the risks and symptoms of ovarian cancer.

Survivor…yeah that’s me!

2010-09-13T05:48:00.000-04:00

Dictionary.com defines survivor as a person who continues to function or prosper in spite of opposition, hardship, or setbacks. For some cancer patients the word survivor does not do justice to the power they felt fighting cancer. They want words that evoke the newfound power they attained since being diagnosed. They want words like slayer, warrior or fighter. Also some in the cancer community say survivor does not pay homage to the ones who succumbed to cancer.

I have a hard time understanding why it is a big deal for some. In my opinion I’m living after fighting this deadly beast so I am…surviving. So for me, the term survivor is more than just a catchphrase; it’s a call to action, a way to establish some sense of power in a situation where losing control can happen very quickly. So call me what you want warrior, fighter, slayer, princess, queen or bitch.

But what I am truly is…a person who continues to function or prosper in spite of opposition, hardship, or setbacks. A true SURVIVOR!

Are You at Risk?

2010-09-12T07:54:00.000-04:00

While the presence of one or more risk factors may increase a woman's chance of getting ovarian cancer, it does not necessarily mean she will get the disease. A woman with one or more risk factors should be extra vigilant in watching for early symptoms.
Risk factors include:

• Genetic predisposition
• Personal or family history of breast, ovarian or colon cancer
• Increasing age
• Undesired infertility
Facts
• All women are at risk
• Symptoms exist - they can be vague, but increase over time
• Early detection increases survival rate
• A Pap test DOES NOT detect ovarian cancer

Recommendations

Current recommendations for management of women at high risk for ovarian cancer are summarized below:
• Women who appear to be at high risk for ovarian or breast cancer should undergo genetic counseling and, if the risk appears to be substantial, may be offered genetic testing for BRCA1 and BRCA2.
• Women who wish to preserve their reproductive capacity can undergo screening by transvaginal ultrasonography every 6 months, although the efficacy of this approach is not clearly established.
• Oral contraceptives should be recommended to young women before they embark on a planned family.
• Women who do not wish to maintain their fertility or who have completed their family may undergo prophylactic bilateral salpingooophorectomy. The risk should be clearly documented, preferably established by BRCA1 and BRCA2 testing, before oophorectomy. These women should be counseled that this operation does not offer absolute protection because peritoneal carcinomas occasionally can occur after bilateral oophorectomy.
• In women who also have a strong family history of breast cancer, annual mammography screening should be performed beginning at age 30 years.
• Women with a documented HNPCC syndrome should undergo periodic screening mammography, colonoscopy, and endometrial biopsy.

Sources
1. American Society of Clinical Oncology. Statement of the American Society of Clinical Oncology: genetic testing for cancer susceptibility. Journal of Clinical Oncology, 1996; 14: 1730-1736.
2. NIH Consensus Development Panel on Ovarian Cancer. Ovarian Cancer: Screening, treatment, and follow-up. JAMA, 1995; 273:491-497.

What a walk!! 2010 GOCA Overcome Ovarian Cancer 5k

2010-09-11T21:33:00.000-04:00

The walk was awesome, over 700 walkers and $120,000 raised!!!

Rantings of a ovarian cancer WARRIOR!!!

2010-09-07T11:06:00.000-04:00

I couldn't think of a nice title for this since its a rant!! Ovarian Cancer lacks the trendy factor, we don’t have a three day run/walk; we don’t have a screening tool. Ask a bunch of women what to look for with breast cancer and most will know at least a little. Ask them about ovarian cancer and the majority won’t even have heard of it, let alone know what the symptoms are. There are NO tests for ovarian cancer that are more than 50% accurate. There is no way to positively detect ovarian cancer that is why it is the deadliest gynecological cancer. By the time most women find out about it, it’s often too late. Know the symptoms! BEAT ovarian cancer

B=Bloating
E=Eating less/feeling full qiuck
A=Abdominal pain
T=Talk to you PCP, GYNE or Gyn OC

Silent no more!!!!

September is National Ovarian Cancer Awareness Month "Silent No More"!!

2010-09-01T13:11:00.001-04:00

Ovarian cancer can no longer be called "The Silent Killer." Symptoms are often subtle, but they are not silent. Women with ovarian cancer DO have symptoms, even in the early stages.

These can include (but are not limited to):
Urinary symptoms (urgency or frequency)
Bloating
Eating less or feeling full quickly
Abdominal or pelvic pain or discomfort or heaviness
Terrible back pain
Additional symptoms may include:
Fatigue
Indigestion
Pain with intercourse
Bowel changes
Menstrual irregularities
Loss of appetite

Increasing abdominal girth

TAKE ACTION: See your doctor, preferably a Gynecologist, if these symptoms are unusual for you and occur or increase in intensity over two-six weeks. Experts suggest a combination pelvic/rectal exam, a trans-vaginal sonogram, and a CA-125 blood test. And, any woman at risk, suspected of having or diagnosed with Ovarian Cancer should consult a Gynecologic Oncologist.

EARLY DIAGNOSIS IS THE KEY.

****NOTE: Pap smears DO NOT detect Ovarian Cancer.****

Again "The Reason Why I Tell My Story”

2010-08-22T09:36:00.002-04:00

As September (Ovarian Cancer Awareness Month) is only nine days away I have decided to retell “The Reason Why I Tell My Story”.

I share my story because I have joined the sisterhood of ovarian cancer survivors. I share my story because I like so many other women who have endured the shock of having cancer, battling cancer with the surgeries and chemotherapy treatments and the continual fear of cancer recurring have a story to tell. I share my story so that women of all ages are reminded of how important it is to always be aware of the very subtle warning signs of ovarian cancer. I share my story in the hope that you do experience unusual symptoms (bloating, pelvic, or abdominal pain, difficulty eating, feeling full quickly, and feeling a frequent or urgent need to urinate); you will seek medical attention even though you might be fearful of the results. I share my story so that we as a community can become better educated regarding the facts and correct treatments so that unnecessary risks are avoided. I share my story in the hope that these, actions offer you the opportunity of dramatically improving your chances for survival.

I share my story because after being diagnosed with ovarian cancer and enduring three twenty-one day rounds of chemotherapy (three different drugs everyday), which I completed on July 11, 2006, I am cancer-free. I share my story so you can see that the check-ups every three to six months are still nerve-wracking. I share my story because it is comforting to know that I am being followed very closely. I share my story so that you will know that throughout this experience, there were so many things in my life that helped me to remain strong and positive; support from friends, family, co-workers, doctors, nurses, and a husband who never left my side were the most significant.

I share my story so that people will know that I have gained so much. I share my story because I am excited about the new research in ovarian cancer which is leading us towards more effective screening tools and better treatment. I share my story because of the pain and sadness I have felt when I hear about sisters who have lost their battle against this disease. I share my story because I have been overcome by fear and anxiety as I await results of blood work every six months, wondering if my cancer has come back. I share my story because as horrible as this disease is, I wouldn't trade anything for this journey. (I know that sounds cliché coming from a survivor, but it is true.) I share my story because I will continue to fight this monster called ovarian cancer and share my story so maybe someone else will have a chance of an early diagnosis, which will lead to a very long remission.

The Fruit of the Spirit

2010-08-02T19:02:00.000-04:00

LOVE
His command is that you walk in love
2 John:6
JOY
For the joy of the Lord is your strength
Nehemiah 8:10
PEACE
Let the peace of Christ rule in your hearts
Colossians 3:15
PATIENCE
Be patient with everyone
1 Thessalonians 5:14
KINDNESS
Be kind and compassionate to one another
Ephesians 4:32
GOODNESS
As we have opportunity, let us do good
Galatians 6:10
FAITHFULNESS
A faithful man shall abound with blessings
Proverbs 28:20
GENTLENESS
Let your gentleness be evident to all
Philippians 4:5
SELF-CONTROL
To live self-controlled, upright and godly lives
Titus 2:12
AGAINST SUCH THINGS THERE IS NO LAW
Galatians 5:22,23

RIP Ginger Ackerman

2010-08-01T22:56:00.001-04:00

Ginger Ackerman, founding member of Georgia Ovarian Cancer Alliance, past President (2005-2006) and board member of the Ovarian Cancer National Alliance passed away July 30, 2010 after a 14 year battle with ovarian cancer. Our thoughts and prayers go out to Ginger's family and friends. Ginger was a tireless advocate and activist for ovarian cancer. She will be missed by all who knew her, but her spirit well live on in our hearts.

2010-07-28T18:03:00.000-04:00

To perform like a "star," to steal the show….take the stage and do the dance, be the spark! Stir up the gift of God which is with you. 2 Timothy 1:6

Journey

2010-07-24T21:20:00.000-04:00

A journey is defined as traveling from one place to another, usually taking a rather long time; trip. For me being an ovarian cancer survivor has been nothing but a journey. You see ovarian cancer snuck into my life with illusive persistence. Now, almost four years later I am the happiest I have ever been with myself (inner and outer). Sure, I still have some really bad days. Days when I fear getting sick again and days when I feel that my friends have no burdens of their own. I know I have climbed mountains and everyday gets a bit easier. I continue to move further and further away from those horrible days four years ago. I realize how truly blessed we all are to have life. I realize how lucky I am to be in this world, to have my strong, supportive, and sometimes loving family (LOL) and so many old and new totally amazing friends. So for me this ovarian cancer has been a journey with some side “trips” and some hard fought “wars” won and lost. And I wouldn’t take anything for it!

When Jesus heard that, he said, This sickness is not unto death, but for the glory of God, that the Son of God might be glorified thereby. John 11:4

Ovarian Cancer National Alliance Power is Teal Conference

2010-07-21T12:07:00.000-04:00

I really enjoyed myself at the Ovarian Cancer National Alliance Power is Teal conference, my first one.... I'm already planning on going next year. The Doctors gave out excellent and easy to understand info on the latest breakthroughs in ovarian cancer and ovarian cancer research. I met a group of the most wonderful, knowledgeable, and inspiring women ever. Jenny Allen’s play "I got sick and then I got better" was amazing. Awareness is my passion and breaking down the myth that there are no early signs of this BEAST of a disease is my goal (patients and doctors). I stayed the extra day for advocacy day on Capitol Hill and a new friend from Georgia and I did a one two punch on our reps. (lol) I met some very inspiring, wonderful and beautiful women. I had an AWESOME time and will be at next year’s conference with bells on.

Thank You!

2010-07-20T20:28:00.001-04:00

I want to thank You for what you have already done. I am not going to wait until I see results or receive rewards; I am thanking you right now. I am not going to wait until I feel better or things look better; I am thanking you right now. I am not going to wait until people say they are sorry or until they stop talking about me; I am thanking you right now. I am not going to wait until the pain in my body disappears; I am thanking you right now. I am not going to wait until my financial situation improves; I am going to thank you right now. I am not going to wait until the children are asleep and the house is quiet; I am going to thank you right now. I am not going to wait until I get promoted at work or until I get the job; I am going to thank you right now. I am not going to wait until I understand every experience in my life that has caused me pain or grief; I am thanking you right now. I am not going to wait until the journey gets easier or the challenges are removed.

I am thanking you right now. I am thanking you because I am alive. I am thanking you because I made it through the day's difficulties. I am thanking you because I have walked around the obstacles. I am thanking you because I have the ability and the opportunity to do more and do better. I'm thanking you because FATHER, YOU haven't given up on me. Amen

GOCA 2010 Walk

2010-07-18T23:31:00.001-04:00

Lets do it in 2o10!!!

Join my team "Shades of Teal". Breaking the silence on the cancer that whispers!!

http://www.gaovariancancer.org/

Meditation

2010-07-16T22:20:00.000-04:00

"Charm is deceptive, and beauty is fleeting; but a woman who fears the LORD is to be praised. Give her the reward she has earned, and let her works bring her praise at the city gate." Proverbs 31:30-31

Life is a Gift

2010-07-07T17:45:00.000-04:00

Each moment of your life is a gift. Learn to relish it. Learn to be in it. Even during your tough times, take a moment to breathe, ground yourself and become present and in the moment. There is much more to your life experiences than you realize. Be aware of your living, the possibilities for discovery, and the appreciation of your connection with humanity.

Watch your words…

2010-07-06T18:41:00.000-04:00

Your words, your dreams, and your thoughts have power to create conditions in your life. What you speak about, you can bring about. If you keep saying you can't stand your job, you might lose your job. If you keep saying you can't stand your body, your body can become sick. If you keep saying you can't stand your car, your car could be stolen or just stop operating. If you keep saying you're broke, guess what? You'll always be broke. If you keep saying you can't trust a man or trust a woman, you will always find someone in your life to hurt and betray you. If you keep saying you can't find a job, you will remain unemployed. If you keep saying you can't find someone to love you or believe in you, your very thought will attract more experiences to confirm your beliefs. If you keep talking about a divorce or break up in a relationship, then you might end up with it. Turn your thoughts and conversations around to be more positive and power-packed with faith, expectation, love, and action. Don't be afraid to believe that you can have what you want and deserve. Watch your thoughts, they become words. Watch your words, they become actions. Watch your actions, they become habits. Watch your habits, they become character. Watch your character, for it becomes your destiny. Watch how your circumstances and situations begin to change when you change the way you speak. The minute you settle for less than you deserve, you get even less than you settle for. The tongue can be your worst enemy!

Assessing

2010-07-05T19:54:00.001-04:00

Having a disease like ovarian cancer provides an opportunity to assess one’s life. It also affords an opportunity to think about one’s relationship with God. I grew-up a Southern Baptist, but being told you have ovarian cancer put new meaning into those prayers and rituals that can sometimes become customary. Someone once asked me to explain to them how I could believe in God. As I sat thinking hey that’s not something I could or can do. If you’re looking for the logic in belief, it’s not there, but I do know that God cares for me and that He has a good place awaiting me when it’s time to go. I credit Him, my medical care givers, and my own stubbornness for my survival of disease. I truly believe that this cancer journey/war has been a blessing. I have been blessed with more friends than I realized that I had. They have provided visits, phone calls, cards, prayers, and undeniable love. My biggest supporter has been my husband of 14 years, Erik. He has been with me every step of the way from connecting up my IVs, driving me here and there, and pushing me at times when I had no will. All of this has not been without a few choice words from both of us, but no one has been privileged to have more love than I have. When I think about this four year cancer journey/war, I realize that even with the ups and downs, the surgeries, and the chemotherapy side effects, that I’ve gained many blessings out of this journey/war. This cancer journey/war is mine, no one else’s. I’ve fought it, I own it, and I’m going to keep fighting it as long as God allows me to do so.

2010-07-01T17:23:00.001-04:00

“When I die, I will not be guilty of having left a generation of girls behind thinking that anyone can tend to their emotional health other than themselves.” Ntozake Shange [“For Colored Girls Who Have Considered Suicide/When the Rainbow Is Enuff...” Writer, Playwright (1948- )]

RIP Phyllis Hyman

Life is a Gift!!

2010-06-03T17:40:00.001-04:00

Happy Memorial Day!!

2010-05-31T18:37:00.001-04:00

Giving honor, respect and thanks to all of those who have sacrificed and are sacrificing their lives every day! Remembering that Freedom isn’t free!! Greater love hath no man than this, that a man lay down his life for his friends. John 15:13 KJV

Happy Mother's Day

2010-05-09T08:21:00.000-04:00

My mother adopted me 44 years ago when I was 2days old. I am so glad she did. She was the most loving mother a person could have asked for and I would have chosen her for myself, had it been my choice! In 1982 my mother was diagnosed with breast cancer and had her left breast removed she fought a courageous battle and seemed to be winning until 1992 when doctors told her the cancer had returned to her right breast. Again the battle was a hard one but she fought. Then in October of 1994 we learned that the cancer had metastasized to her lung there would be another battle but this time the outcome would be much different. My mother lost her battle with breast cancer on February 21, 1995 at the age of 63. I remember those days before she died asking GOD “Please don’t take her away from me, what will I do without her”. I am comforted to know that she is in a better place and no longer in pain and that someday I will be with her. It doesn’t take away the ache or the longing to pick up the phone and call her and hear her say “Hey chocolate drop”. As a teenager, I recall times I would roll my eyes at something she did or said and say “I hope I never do that”! Now every time I do or say something that reminds me of something she did or said I chuckle and remember her with a smile because now I’m proud of every piece of me that is like her.

Courage

2010-04-11T12:13:00.001-04:00

Life continues to treat me well.

Courage doesn't always roar. Sometimes courage is the little voice at the end of the day that says I'll try again tomorrow. -Mary Anne Radmacher

God has given me some instances in my own life and journey that have revealed to me the meaning of courage. From little things like learning to advocate and share my experiences with ovarian cancer with my head held high (while inside wanting to forget it ever happened) is courage. I don't always get it right. So for those of you who know me know that I am far from perfect. I don't always do the right thing, think the right thing, say the right thing or make the right decisions. I may let my fears get my mood down in a way that makes me miss the blessings of the day. And a simple conversation I have to answer someone's questions may sink me so far into my experience emotionally that I can't get over the memories of the pain and anguish for days. But I don't have the luxury to sit at home and cry. I have to face those emotions and my fears (recurrence), regroup, get up, and get to work. I also have to remember that my experience with cancer was not only to build my resilience and my reliance and trust in God, but also to be able to understand the suffering of others in whatever forms it comes, to be able to relate more to the people I encounter during my life, to understand their pain and their suffering. (That one has taken me four years to realize) And hey even if I don't get it right, I get to try again. Now that's courage to me.

No longer "The Silent Killer”

2010-03-31T10:44:00.000-04:00

Ovarian cancer can no longer be called "The Silent Killer." Symptoms are often subtle, but they are not silent. Women with ovarian cancer DO have symptoms, even in the early stages.
Early symptoms of ovarian cancer often include abdominal bloating, pelvic or abdominal pain, trouble eating or feeling full quickly, and feeling the need to urinate urgently or often. Other symptoms of ovarian cancer can include fatigue, upset stomach or heartburn, back pain, pain during sex, and constipation or menstrual changes. As you can imagine, these symptoms can be caused by a variety of benign conditions, which is why ovarian cancer is often misdiagnosed in its early stages. After all, most women experience some of these symptoms at some point in their lives! The most important thing to keep in mind is that women should see their doctors if they experience these symptoms for longer than two weeks, and if any of these symptoms are new to them. Some other things to remember are a Pap test does not detect ovarian cancer, and there is currently no vaccine.
It is important for all of us to be persistent with our doctors about our health care. Keep the lines of communication open, and be sure to mention any unusual symptoms you may be experiencing. Don’t be afraid to talk about how you are feeling. Don’t be afraid to break the silence.

Daily Meditation

2010-03-29T17:47:00.002-04:00

The LORD has done great things for us, And we are glad. Psalm 126:3

Reflections…

2010-03-20T23:32:00.000-04:00

As an ovarian cancer survivor it took a long time for me to tell my story. Now it’s hard to get me not to talk about it. Not everyone is comfortable sharing their story. That is all good, I can get with that, and there are still some parts of my cancer experience that are too personal to share. Every survivor has a story. Just like being pregnant everyone's cancer experience is different, meds treat people differently, side effects are different, psychological and physical effects are different. Cancer can consume you if you let it, taking over your every thought and everything around you. I know the hold this disease can have over you, your friends, and your family. Some days I would feel like I could crawl inside myself and hide, like no one else in the world could possibly feel like I did. Some days I would go into work and try to hide being upset and think that my co workers would think "oh there goes cancer girl", upset over… (fill in the blank.) It’s said that a positive mental attitude can go a long way. And I agree. Get cancer, your life changes drastically. Values change. Friends change. Thoughts change. Long term plans change. The resentment is unbelievable – once you’ve had cancer YOURSELF, life is totally different. It almost seems like we ought to be able to just have a holiday. Take a long break. But of course we can’t. We (like everyone else) have to work. We have to pay bills. We have to deal with everyday ups and downs, highs and lows. But it’s hard, as we feel like our lives are short and WHY should we have to bother with these things? Meanwhile, back at the ranch I’ve found in life you always want a flawless ending. But I’ve learned the hard way, that some poems don’t rhyme and some stories don’t have a clear beginning, middle or end. Life is about not knowing, having to change, seizing the moment and making the best of it, without knowing what’s around the next corner... oh well that’s LIFE… the uncertainty of it all.

T.E.A.L
Take Early Action and Live

On this my "cancerversary"!

2010-03-17T10:41:00.000-04:00

Never give up... never surrender… Four years now and cancer-free! Feeling great and looking forward to at least 60 more! Thanks to the many family and friends who supported me, prayed for me, and were just there for me. “Don’t pray it were easier, pray you were better. Don’t pray for fewer problems, pray for more skills. Don’t pray for fewer challenges, pray for more wisdom.”

Kim E.

In Memoriam Dorothy Smith Simmons

2010-02-21T09:04:00.004-05:00

I know I haven't posted in awhile but life continues to treat me well. Today I am wearing pink in honor of my wonderful/beautiful mother who lost a very courageous battle with breast cancer 15 years ago. Train up a child in the way he should go: and when he is old, he will not depart from it. Proverbs 22:6 KJV Thank you Mommie for all you did, Peace In Rest (PIR).

Ovarian Cancer Patients Have Lower Death Risk When Treated By Experts

2009-12-03T15:21:00.000-05:00

Women with ovarian cancer are less likely to die from their disease if they are treated by specialist gynecological oncologists than if they are cared for by general gynecologists, according to the results of a study carried out in Scotland, UK, and reported at this week's 16th International Meeting of the European Society of Gynecological Oncology (ESGO) in Belgrade, Serbia.

An analysis of survival data from a cohort of 912 ovarian cancer patients treated in the West of Scotland Managed Clinical Network showed a 24% lower risk of death in women treated by gynecological oncologists who specialize in the treatment of gynecological cancer than by general gynecologists who treat the full range of gynecological problems that women can experience.

Reporting her findings at a late breaker session of the congress, Dr Alex Stirling, from the West of Scotland Cancer Surveillance Unit, explained that recent reorganization of cancer services in Scotland was designed to provide equal standards of care for patients wherever they lived. However, some women continue to be treated away from larger cancer centers, and do not therefore have access to gynecological oncologists.

Dr Stirling added that, by the end of the year, cancer services in the area will be centralized, and selection of cases for surgery will be decided by a specialist multidisciplinary team - hopefully helping to reduce remaining inequalities of care and ensuring that more difficult cases are treated by gynecological oncologists.

Source
European Society of Gynecological Oncology

Passage of House Health Reform Potential Impact for Women with Ovarian Cancer

2009-11-15T18:35:00.000-05:00

With the passage of the Affordable Health Care for America Act (H.R. 3962) in the House of Representatives this past weekend, women with ovarian cancer and their families may be wondering how this bill will affect their health care coverage. Listed below are some major provisions of the bill. The House bill is not the final Health Reform bill – we will not know what final provisions will be enacted until a joint bill is passed by both Houses.

Most Americans will be required to have insurance
•The bill will require all individuals to have health insurance and will levy a penalty on those without coverage, starting in 2013. Exceptions will be granted for religious or financial reasons.
•Health Insurance Exchanges will be organized. Individuals who do not already receive health insurance through their employer may purchase health insurance through Health Insurance Exchanges. These exchanges will offer insurance plans that include a minimum benefits package and comply with other cost and quality standards.
Benefits
•Requires coverage for individuals with pre-existing conditions. Additionally, no insurers will be allowed to put annual policy limits or lifetime policy limits into effect or cancel a policy when individuals file expensive claims.
•Insurance Companies prohibited from charging women more based on gender. A practice known as gender rating, where women are often forced to pay higher premiums for the same coverage men receive will be eliminated.
•Eliminates Cost-Sharing for preventive services in Medicare and Medicaid including mammograms and Pap tests.
•Provides wellness grants for small employers to implement a qualified wellness program.
Coverage
•Employers will have to offer coverage to employees and pay for a majority of the premium costs.
•A national “Health Insurance Exchange” will be created for individuals who do not already receive health insurance through their employer. Additionally, states that comply with federal standards will be eligible to run their own health insurance exchanges. Within the exchanges, insurance plans provided by private companies will be available for purchase, as well as a competing government-run health insurance plan.
•Individuals who currently are uninsured, have expensive coverage through an individual plan, or who work for small businesses may seek a health insurance plan through the Exchange over the next few years.
•Individuals and families can purchase insurance on the exchange if they are not covered by employer-sponsored insurance or if they do not have other federal insurance including Medicare, Medicaid, TRICARE or Veteran Affairs (VA) coverage.
•If a person is a full-time employee receiving coverage through their work, they will not be able to shop for insurance through the Exchange unless their employee-provided coverage accounts for more than 12% of their income. By 2015, the Secretary of Health will determine whether employees of large businesses may enter the Exchange.
Cost
•Low and middle-income individuals will receive a federal subsidy to enable them to afford their purchase of health insurance. Financial assistance to pay for health insurance will be provided to families with incomes up to 400 percent of the Federal Poverty Level. For example, assistance will be provided to a family of four with an income below $88,200. (Visit the Federal Poverty Guidelines to see more).
•The bill places caps on out-of-pocket spending. Individuals will have annual out-of-pocket spending limits of $5,000 per year, and families will have annual out-of-pocket spending limits of $10,000 per year. Lower-income individuals and families with incomes below 350 percent of the Federal Poverty Level will have lower out-of-pocket limits.
•Small businesses will receive a tax credit to assist them in offering health insurance to their employees.
Changes to Existing Programs
•Medicare Part D Gap will be reduced and eventually eliminated. There will be a $500 reduction in the coverage gap (also known as the Medicare Part D “doughnut hole”). By 2019, the “doughnut hole” will be completely eliminated.
•Provides a discount on brand name drugs purchased through Medicare.
•COBRA coverage may be retained until the exchange is established.
•Provides numerous incentives for coordination of care, enactment of alternative medical liability laws, administrative simplicity and use of comparative effectiveness determinations.
What’s next?
Health care reform is far from over. First, the Senate must pass either this bill or its own bill. Next, a Conference Committee must be formed to combine the House and Senate bills. Then that combined bill must be voted on by both the House and Senate. Once passed, the bill will be signed by the President. Many do not expect the President to sign a health reform bill until February, 2010.

Article courtsey of the Ovarian National Alliance.

Take Charge!

2009-11-11T13:26:00.001-05:00

What I have realized through this experience is that we as women need to take charge of our own health care. Just because a physician tells you, does not mean you should accept it as gospel if you still feel like something is wrong. We as women know our bodies and must trust our own instincts when we think something is wrong. Get a second, third fourth or even a fifth opinion. Also ask as many questions as you need and if you are not comfortable with the answers find a new doctor. We should also share information, sharing information on ovarian cancer helps raise awareness, and will help you or someone you know get a much earlier diagnosis. Early diagnosis makes a huge difference. Again, I want to encourage all women to take charge of your health, for we know our bodies best!

This is God’s day. My faith gives me power. My prayers and all those that are praying for me give me strength. Amen

The 411 on the seasonal flu and H1N1

2009-11-03T20:18:00.001-05:00

What Ovarian Cancer Survivors Need To Know
Together with the White House, the Ovarian Cancer National Alliance participated in a discussion about the flu, both seasonal and the H1N1 viruses. The discussion was led by cancer and vaccine experts at the Center for Disease Control and Prevention (CDC).
Women with ovarian cancer have a higher chance of having complications from the flu virus. As a result, the Ovarian Cancer National Alliance advises you to read the information provided below and consult your doctor about what actions you should take to protect yourself.

Prevention

How can I protect myself from getting the flu?
Experts suggest vaccination. In addition, you should wash your hands frequently and avoid touching your face.

Why are there two vaccines this year?
There are two vaccines for two different types of flus this year. One is the seasonal flu, the other is H1N1 (commonly referred to as “swine flu”). Both vaccines are made through the same process, and should have the same efficacy against the viruses. As in previous years, anyone allergic to eggs should not receive the shot form of the vaccine.

If I am an ovarian cancer survivor, can I get the nasal spray/mist? Should my family members that I am in close contact with get the nasal spray/mist?
People with compromised immune systems, including people in treatment or with a history of cancer should not get the nasal spray. The nasal spray vaccine contains weakened live viruses. These people should only get the shot, which contains dead viruses.

Individuals who do not have compromised immune systems, including caregivers of those with cancer, may opt to have the nasal spray vaccine. The nasal spray/mist has only been approved for use in people 2-49 years of age who are not pregnant and do not have compromised immune systems.

If I am an ovarian cancer survivor and am not in treatment, should I get a flu vaccine?
Medical experts recommend that if you have a history of cancer you should receive both the seasonal flu shot and the H1N1 shot (not the nasal spray/mist). People with a history of cancer are at high risk of complications from the flu.

If I am in treatment for ovarian cancer, should I get the flu vaccine?
If you are in treatment for cancer, medical experts recommend that you receive both the seasonal flu shot and the H1N1 shot (not the nasal spray/mist). Dr. Bill Atkinson, vaccine expert at the Center for Disease Control and Prevention (CDC), recommends that if you receive your vaccination while receiving chemotherapy, you should confer with your doctor about getting re-vaccinated following treatment. There is no evidence that the flu shot will affect the efficacy of chemotherapy.

How do I get the vaccines?
Call your doctor to see what s/he can offer. The H1N1 vaccine is being distributed to states through the federal government, which purchased the vaccine. The seasonal flu vaccine is likely available at your doctor’s office, but may be found in retail stores such as pharmacies and grocery stores. The H1N1 vaccine is paid for by the federal government, but your provider may charge an administrative fee. If your provider does not offer the H1N1 vaccine, call your State Department of Health.

After I get vaccinated, what should I do?
1) Create a written record of your cancer and the treatment you are receiving and keep this information with you at all times.
2) Create a legible list of your medications and the time of day they are taken.
3) Keep your doctor’s name, contact information, and office address with you at all times.
4) Continue taking prescribed medications even if you are sick with the flu unless your doctor says otherwise.
5) Be alert to changes in your breathing and contact your doctor immediately if you notice changes.

The Flu

What are the symptoms of the flu?
Seasonal flu symptoms may include fever, coughing, sore throat, runny or stuffy nose, headaches, body aches, chills and fatigue. In the case of the H1N1 flu, symptoms may also include vomiting and diarrhea. If you get these symptoms and have a condition that would put you at increased risk of complications, such as ovarian cancer, call your health care provider.

Additionally, see your doctor immediately if you experience dizziness, confusion, severe/persistent vomiting, rapid breathing, shortness of breath, difficulty breathing or flu like symptoms that get better and then worse – this may indicate a secondary infection.

If your child has a bluish skin color, is not drinking fluids, lethargic, irritable, and/or has a rash, consult your doctor.

If I get the flu, what type of treatment can I get?
If you are diagnosed with ovarian cancer, you can receive anti-viral treatments, such as Tami flu and Rolenza. Please see your doctor for treatment options, as not everyone will need or be eligible for treatment.

If I get the flu, what should I do?
Call your doctor to see what s/he recommends in terms of treatment. It is also advised that you stay home as to not spread the flu virus and infect others. If you must go out, consider a face mask.

If I am in treatment and I think I have the flu, what should I do?
Call your doctor immediately. Your doctor will likely recommend anti-viral treatment, and the flu may affect your ability to receive chemotherapy on schedule.

This article was taken from the November 2009 Ovarian Cancer National Alliance nwsletter.

Think PINK

2009-10-31T14:58:00.002-04:00

On the final day of Breast Cancer Awareness month...think PINK and remember those who are battling this terrible disease, those who have battled this terrible disease and won, those we have lost the battle to this terrible disease, and the loved ones who lost someone to this terrible disease...

Decisions

2009-10-30T11:21:00.000-04:00

Decisions become easier when your decision to please God outweighs your will to please the world" Anso Coetzer

Philippians 4:6-7
Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.

The Reasons Why I Share My Story

2009-10-29T04:55:00.000-04:00

I share my story because I have joined the sisterhood of ovarian cancer survivors. I share my story because I like so many other women who have endured the shock of having ovarian cancer, battling ovarian cancer with the surgeries and chemotherapy treatments and the continual fear of ovarian cancer recurring have a story to tell. I share my story so that women of all ages are reminded of how important it is to always be aware of the very subtle warning signs of ovarian cancer. I share my story in the hope that if you do experience unusual symptoms (bloating, pelvic, or abdominal pain, difficulty eating, feeling full quickly, and feeling a frequent or urgent need to urinate); you will seek medical attention even though you might be fearful of the results. I share my story so that we as a sisterhood of women can become better educated regarding the facts and correct treatments of ovarian cancer so that unnecessary risks are avoided.
I share my story because I am excited about the new research in ovarian cancer which is leading us towards more effective screening tools and better treatment. I share my story because of the pain and sadness I have felt when I hear about “Sisters” who have lost their battle or are losing their battle against this dreaded disease. I share my story because I have been overcome by fear and anxiety as I await results of blood work every six months, wondering if my cancer has come back. I share my story because as horrible as this disease is, I wouldn’t trade anything for this journey. (I know that sounds crazy.) I share my story because I will continue to fight this monster called ovarian cancer so maybe someone else will have a chance of an early diagnosis, which will lead to a very long remission.

God is our refuge and strength, a very present help in trouble. Psalm 46:1

I can smile today, because I woke up!

2009-10-28T08:58:00.000-04:00

It took me a while to come around to the thought that cancer would be a part of my life forever. I am so very thankful and appreciative of my husband’s and friends love and support. Being a cancer survivor has also helped me to be thankful and appreciative of all the small things in life. There are a million little things I notice and appreciate now, like strawberry cupcakes from your favorite bakery, when someone tells a funny joke and you almost pee your pants or when it’s raining very hard and you run outside to get the mail and you get completely soaked and you don’t even care. I made it through the night and woke up to a brand new day! "I can smile today, because I woke up!” Stir up the gift of God which is with you.
2 Timothy 1:6 Therefore I remind you to stir up the gift of God which is in you through the laying on of my hands.

Patience

2009-10-27T09:46:00.000-04:00

While going through my cancer battle I came to the realization that there are three types of people who battle cancer:
1. The person who throws up his or her hands and gives up.
2. The person who digs in his or her heels for a battle but gives out of steam before it's over.
3. The person who acknowledges that fighting cancer is a lengthy, tiring ordeal and decides to stick it out and fight anyway.
So as much as I wanted my battle to be over and done with and for things in my life to get back to normal, I couldn’t predict how long it would take for God to heal me. It could have been weeks, months, or even years. All I knew at that time was I was impatient and wanted things done yesterday, so the prospect of something taking years was not very attractive to me. My prayer at that time was that God would grant me patience and give me peace while He healed me in whatever way He saw fit. So for those of you who are struggling with being impatient don’t be so eager to reach the milestones know that the race is not given to the swift or the strong but to those who endure to the end.

Colossians 1:10-11
And we pray this in order that you may live a life worthy of the Lord and may please him in every way: bearing fruit in every good work, growing in the knowledge of God, being strengthened with all power according to his glorious might so that you may have great endurance and patience

I’m so glad trouble don’t last always

2009-10-26T12:09:00.002-04:00

Today's title comes from the words of a Negro spiritual. And although not grammatically correct, the lyrics are true. I know that things are not ideal now, but a better day is ahead. Sight constantly reminds us of all the obstacles we face in life, the impossibilities, and the hardships! You might as well give up! Whereas faith assures us though things are rough now, there’s a stronger force out there working in our favor to turn things around. No, we can’t see it, but if you’re a believer, you feel it and TRUST that it’s there. I do faithfully believe, no, I KNOW, that God is with me every step of the way.
2nd Corinthians 5:7
For we walk by faith, not by sight.

The tongue can be your worst enemy!

2009-10-21T05:42:00.000-04:00

Your words, your dreams, and your thoughts have power to create conditions in your life. What you speak about, you can bring about. If you keep saying you can't stand your job, you might lose your job. If you keep saying you can't stand your body, your body can become sick. If you keep saying you can't stand your car, your car could be stolen or just stop operating. If you keep saying you're broke, guess what? You'll always be broke. If you keep saying you can't trust a man or trust a woman, you will always find someone in your life to hurt and betray you. If you keep saying you can't find a job, you will remain unemployed. If you keep saying you can't find someone to love you or believe in you, your very thought will attract more experiences to confirm your beliefs. If you keep talking about a divorce or break up in a relationship, then you might end up with it.
Turn your thoughts and conversations around to be more positive and power-packed with faith, hope, love, and action. Don't be afraid to believe that you can have what you want and deserve. Watch your thoughts, they become words. Watch your words, they become actions. Watch your actions, they become habits. Watch your habits, they become character. Watch your character, for it becomes your destiny. Watch how your circumstances and situations begin to change when you change the way you speak.
The minute you settle for less than you deserve, you get even less than you settle for.

In Memoriam

2009-10-20T05:03:00.002-04:00

Rest in peace Frankie Harrell. I rejoice in the knowledge that we will meet again. There is no cancer in heaven. Only love.

Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths. Proverbs 3:5-6 (KJV)

It’s not what you know, it’s who you know.

2009-10-15T22:04:00.000-04:00

You're waiting for that magical day when someone makes the connection and recognizes who you really are. Maybe they'll first catch the sparkle in your eye. Or perhaps they'll marvel at your insights and the depth of your spirit. Someone who will help you connect the dots, believe in yourself, and make sense of it all. Someone who will understand you, approve of you, and unhesitatingly give you a leg up so that life can pluck your ready, ripened self from the branch of magnificence. Well, I'm here to tell you, your wait is over. That someone is you!
Just proving that age-old adage “It’s not what you know, it’s who you know”.

Ovarian Cancer, it's personal stuff but we still need some answers. Visit your doctor and don't be embarrassed. Survival begins with exams and awareness.

It’s my birthday!

2009-10-14T07:53:00.000-04:00

I always think of birthdays as personal holidays, and I always take a vacation day from work - that's one of my birthday gifts to myself. Since my parents have both passed I am usually the one who celebrates my birthday telling every and anyone who will listen that “It’s my birthday!” and having cake. Of course I’m celebrating It’s my birthday! I am another year older, wiser, and more grateful. So…today I’m going to be around people who matter to me, have some cake, maybe treat myself to a massage and a new pair of shoes or two or three who knows (tee hee hee). It’s my birthday! It’s my birthday!

Thought for the day...

2009-10-13T21:00:00.000-04:00

Be the kind of women that when your feet hit the floor each morning the devil says~~"Oh Crap, She's Up!"

Cancer and my STRENGTH!

2009-10-12T13:10:00.002-04:00

Folk have no idea until they themselves go through it. No one knows the emotion of love till they find it, the loneliness of death until a loved one is gone, and the triumph of defeat until they win. I can't begin to tell you the emotional roller coaster life and cancer has taken me on. To have lost my dear Auntie Nora (my Libra sister) three days before my cancer diagnosis, she was my usual source of strength and support since my parents death; to have felt constantly unwell always nauseous and tired, to have lost all your body hair, to have feared. These represented only a small fraction of the experiences that confronted me. I knew GOD would not give me anything more than I could handle… but I never dreamed HE had so much confidence in me. Thank you LORD for reminding me that YOU are in control of ALL THINGS! The stuff that makes me feel good about myself is your gift to me...and the stuff that I have to struggle through is also a gift; because it makes me stronger. Gospel singer Maurette Brown-Clark has a song that says "It ain't over...until GOD says it's over"… Anyone can give up; it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength.
The LORD is good, a refuge in times of trouble. He cares for those who trust in him… Nahum 1:7
Happy Birthday Auntie Nora, miss you! Peace in Rest!
Maurette Brown Clark~ It Ain't Over

Sisters...

2009-10-11T12:12:00.001-04:00

Life is too short to wake up with regrets.
So love the people who treat you right.
Love the ones who don't just because you can.
Believe everything happens for a reason
If you get a second chance, grab it with both hands.
If it changes your life, let it.
Kiss slowly.
Forgive quickly.
God never said life would be easy.
He just promised it would be worth it.

My Wish for you...

2009-10-10T06:44:00.003-04:00

Comfort on difficult days, smiles when sadness intrudes, rainbows to follow the clouds, laughter to kiss your lips, sunsets to warm your heart, hugs when spirits sag, beauty for your eyes to see, friendships to brighten your being, faith so that you can believe, confidence for when you doubt, courage to know yourself, patience to accept the truth, Love to complete your life.”

Rascal Flatts~My Wish

Bomshel~Fight like a Girl

"Why?"

2009-10-09T09:38:00.001-04:00

I sometimes find myself asking the question, "Why?" Not so much why I was the one to get cancer, but rather, why I am the one who survived; the one who got a second chance? The only answer I can find is that we are all in this world for a reason. I think I am here to make some laugh and to make some cry. I would love to think that I am here to make some see that life is too short to be wasted and too precious to be ignored. Throughout this experience I have realized my own strengths. I fought this disease with everything I had and even though I lost things doing it: a year of my life, my hair (I know it’s just hair but wait until you lose it, or as mine did fall out in patches) friendships and the ability to have children, I have gained some things that are far more valuable, a renewed faith and a passion for life. I have gone through something only some ever will. Having cancer does not mean your life is over. Rather, it means it has just begun. Mine has anyway. I wish to make others see this too. Life after cancer is possible. It is possible to have this disease, fight it, and move on to live!
Dear God, you changed my fears to faith, my reluctance to resolve, and my uneasiness to peace. I give you thanks for your transforming power in my life. Help me to be a doer of your word, promoting spiritual growth and development in my life. Amen!

The Ovarian Cancer National Alliance introduces the Interim Practice Guidance and the Symptom Diary in the U.S.

2009-10-08T19:19:00.000-04:00

Washington, D.C. – October 5, 2009. In a bold effort to provide women and their doctors with better information about how and when to take the necessary steps to obtain an early diagnosis for ovarian cancer, the Ovarian Cancer National Alliance has taken the lead in posting guidance for diagnoses on its web site. The Interim Practice Guidance, endorsed by prominent specialists in the field of gynecologic cancer, marks the first time ovarian cancer diagnostic protocols have been made available to the public. In addition to the guidance, a Symptom Diary that helps women measure the persistency and severity of their symptoms (initially developed in the United Kingdom by Ovarian Cancer Action), has been reproduced in conjunction with the Gynecologic Cancer Foundation, with permission for use in the United States.

For the full article and a downloable Tool Kit, http://www.ovariancancer.org/diary/

In Memoriam

2009-10-02T14:38:00.000-04:00

Rest in peace Valerie Dial Thomas. I rejoice in the knowledge that we will meet again. There is no cancer in heaven. Only love. Come to me all that labor and are heavy laden and I will give you peace. Matthew 11:28

“Just give us the facts. Just the facts.”

2009-10-01T04:51:00.000-04:00

I did a very informative ovarian cancer lunch and learn at my job on Tuesday 9/29/2009. We had so many question and comments from women like “Doesn’t a pap diagnose ovarian cancer?”, “My daughter got a shot and her doctor said it was for ovarian cancer.” and “I had a partial hysterectomy can I still get ovarian cancer?” My TEAL warriors we have our work cut out for us. I have pledge that as long as I have breath in my body I will SHOUT about the symptoms and risk factors and dispel all the myths of ovarian cancer. Fact based awareness is how I am going to educate women from now on. As Sgt. Joe Friday on the popular 60’s police drama said “Just give us the facts. Just the facts.” Like a Pap smear does not diagnose ovarian cancer, currently there is no shot against ovarian cancer, for cervical cancer there is a shot but not for ovarian cancer and a partial, hysterectomy removes only the upper two-thirds of the uterus. The ovaries, fallopian tubes and cervix are not removed and yes you can still get ovarian cancer. I hope that educating women on the facts of ovarian cancer will help with early detection, reduction of risks and help with finding correct treatment options for them.

The fight continues!

2009-09-30T08:18:00.001-04:00

Today is the last day of Ovarian Cancer Awareness month. But for those of us who are soldiers in the war on ovarian cancer awareness the fight continues. Awareness never ends!

Today is TEAL Tuesday, TEAL we find a cure!!

2009-09-29T05:46:00.001-04:00

As an ovarian cancer survivor I am an advocate of awareness, education and research. Early detection and a CURE are my passion. Stir up the gift of God which is with you. 2 Timothy 1:6

I can smile today, because I woke up!!

2009-09-28T04:14:00.002-04:00

It took me a while to come around to the thought that cancer would be a part of my life forever. Being a cancer survivor has helped me to be thankful and appreciative of all the small things in life. There are a million little things I notice and appreciate. Like a comfortable Spring-like or Autumn-like day, eating chocolate, hugs, sunshine and a kiss. I am thankful and appreciative of my husband’s love and support, my family, friends, co-workers and laughter for healing the soul. I made it through the night and woke up to a brand new day!!"I can smile today, because I woke up!!" Make today awesome!
Stir up the gift of God which is with you. 2 Timothy 1:6

Facts about Ovarian Cancer

2009-09-27T11:37:00.000-04:00

**Ovarian cancer is a serious and under-recognized threat to women's health.
**Ovarian cancer, the deadliest of the gynecologic cancers, is the fifth leading cause of cancer death among U.S. women.
**Ovarian cancer occurs in 1 out of 57 women.
**It is expected that 20,180 women will be diagnosed in 2009.
**An estimated 15,310 American women will die from ovarian cancer in 2009.
**Currently, 50% of the women diagnosed with ovarian cancer die from it within five years; among African American women only 48 percent survive five years or more.
**Ovarian cancer is very treatable when it is detected early, but the vast majority of cases are not diagnosed until the cancer has spread beyond the ovaries.
**In cases where ovarian cancer is detected before it has spread beyond the ovaries, more than 90% of women will survive longer than five years.
**Only 25% of ovarian cancer cases in the U.S. are diagnosed in the early stages.
**When diagnosed in advanced stages, the chance of five-year survival is only about 25%.
**Raising public awareness of ovarian cancer by educating doctors and women about the disease could save lives.
**More ovarian cancer research is needed- to develop early detection tools, better therapies, cures, and to prevent the disease.
**Much more needs to be learned about what causes ovarian cancer and how to prevent it.
**90% of women diagnosed do not have a family history that puts them at higher risk.
**Ovarian cancer research is DRASTICALLY UNDER-FUNDED. The National Cancer Institute (NCI) spent close to $70 million in 2001 on ovarian cancer research, $407.5 million on breast cancer research, $150.3 million on lung cancer research, and $136.5 million on prostate cancer.

Turning this whisper into a SHOUT!!!

Separating fact from fiction ,if you or someone you know have ovaries PLEASE READ!!!!

2009-09-22T08:24:00.001-04:00

Myth: The Pap test can diagnose ovarian cancer.
Fact: A Pap test only diagnoses cancer of the cervix (the opening of the uterus).

Myth: Ovarian cancer has no symptoms.
Fact: Symptoms may include persistent and progressive abdominal pain, bloating, or discomfort; nausea, indigestion, or gas; urinary frequency; constipation, or diarrhea; abnormal vaginal bleeding; unusual fatigue; unexplained weight loss or gain; and shortness of breath. There may also be pain with intercourse. Most symptoms are not gynecologic.

Myth: There are no risk factors for ovarian cancer.
Fact: Risk factors for this disease include increasing age; family history of ovarian, breast, or colorectal cancer; personal history of breast cancer; never bearing a child or having a child later in life; and using talc in the genital area for several years. Use of high-dose estrogen without progesterone for long periods of time (10 years) is a risk factor. However, today combination therapy (estrogen and progesterone) is more common.

Myth: A high CA-125 blood level always indicates ovarian cancer.
Fact: It is not uncommon for pre-menopausal women to have a high CA-125 level because of non-cancerous conditions such as uterine fibroids, inflammation of the fallopian tubes, or endometriosis. The CA-125 blood test is more accurate in post-menopausal women. Currently, no screening test is 100% accurate in detecting ovarian cancer.

Myth: If ovarian cancer does not run in my family, I cannot get it.
Fact: All women are at risk for ovarian cancer. Only 10% of cases are hereditary (inherited).

Myth: Ovarian cancer has no cure.
Fact: If ovarian cancer is detected early and treated properly, there is a 90% chance of survival for at least five years. However, only about one quarter of ovarian cancer cases are diagnosed early. Late diagnosis is associated with significantly lower survival rates—about 25%.

Myth: Women who have their ovaries removed cannot get ovarian cancer.
Fact: Women who have their ovaries removed can't get ovarian cancer unless a bit of undetected cancer spread before the removal. This is a rare event. In addition, a rare type of cancer called primary peritoneal carcinoma, a close relative of ovarian cancer, can develop when there are no ovaries. Primary peritoneal carcinoma starts in the inside lining of the abdomen and pelvis. It looks similar to ovarian cancer under the microscope. It also has the same symptoms, spreads in a similar pattern, and is treated the same way as ovarian cancer.

Myth: Ovarian cancer can be prevented.
Fact: Currently, there is no way to prevent ovarian cancer with 100% certainty. However, several things can help reduce the risk:
-Prophylactic oophorectomy—having both ovaries removed along with the fallopian tubes as a preventive measure—can reduce risk by more than 80%.
-Taking oral contraceptives for at least five years can reduce risk by 50%
-Pregnancy and breast-feeding, tubal ligation (tying the fallopian tubes), and hysterectomy (removal of the uterus) can all reduce risk.

Myth: Having ovarian cysts increase your risk of ovarian cancer.
Fact: Most cysts develop from the changes in hormone levels during the menstrual cycle and the production and release of eggs from the ovaries. Most cysts are harmless and go away on their own. However, some can be cancerous.

Note: If you find yourself in the greater Atlanta Georgia area on Saturday September 26, 2009 come out to the Georgia Ovarian Cancer Alliance “Overcome Ovarian Cancer” 5k walk at 9:00am at Sanctuary Park in Alpharetta. Come out and join us for this year's event. It will be a truly exciting and successful day for gynecological cancer survivors, their families, caregivers and friends and you need to be a part of it all. Visit gaovariancancer.org for more information!

My Inspiration

2009-09-21T19:40:00.001-04:00

My inspiration during this my cancer journey has been God, Jesus Christ my personal savior and myself Kimberly Marshon Simmons-Emory. Wow, never a million years did I think I would be an inspiration to me. When I would think about people who inspire, me Kimberly Marshon Simmons-Emory was never at the top of the list or even in the top 10, 20 or 100 for that matter. And then came along the big “C” and flipped the script.

Sometimes life seems so unfair it’s hard to imagine that things will ever get better, but every day brings another chance to make new choices and go forward. Listen to the wisdom deep within you and have faith that tomorrow will bring you closer to the answers don’t wait for someone else to encourage or inspire you. Inspire and encourage yourself, believe that you have the power, the nerve, and the audacity to make things change. You will know instinctively through the grace of GOD what to do. Keep your faith, especially in God and yourself! Remember there is a saying that says "What lies behind us and what lies before us are tiny matters compared to what lies within us."

The lyrics to one of my favorite gospel songs "Encourage Yourself" by Donald Lawrence and the Tri City Singers say:

Sometimes you have to encourage yourself.
Sometimes you have to speak victory during the test.
No matter how you feel speak the words you will be healed.
Speak over yourself encourage yourself in the lord.
The pressure is all around but God is present help.
The enemy created walls but remember giants they do fall.
Speak over yourself encourage yourself in the lord.
As I minister to you oh I minister to myself.
Life can hurt you sooo till you feel there's nothing left.
No matter how you feel speak the word and you will be healed.
Speak over yourself encourage yourself in the lord.

Supporting the fighters, admiring the survivors, honoring the taken, and never, ever giving up hope! It’s the GOD in me!

Not only surviving, but Living!

2009-09-20T17:17:00.001-04:00

Ovarian Cancer snuck into my life with illusive persistence. At the time of my diagnosis I had already endured months of pain and anxiety. My relationships were changing and my emotions were in a constant state of turmoil. It is little wonder that this disease is sometimes called the silent killer. My diagnosis came three days after I had lost my dear beloved Auntie Nora. My Libra sister, I was born two days after her birthday on Oct. 12. Since I had lost my parents, my mother in 1995 and my father in 1999, I could always count on her for support and advice. She always held a very special place in my heart. Devastated by her death I was contemplating putting off the surgery until after her funeral but on the advice of my doctor, trusted family members and friends I decided to have the surgery. So on March 17, 2006 my left ovary, fallopian tube, omentum and appendix were removed.
When I woke up from sugary, I was surrounded by my husband, three of my cousins, a very dear friend and my doctor. The pain in their eyes was so evident. The doctor had sent my tumor to pathology but he was already pretty sure it was cancer. My God I was face-to-face with ovarian cancer! The next four months were tough for me and everybody around me. There is nothing good I can say about chemotherapy, it sucked! My chemotherapy regime was very aggressive and I needed help from my mother-in-law and aunt. So they came from Cleveland, Ohio and Augusta, Georgia to stay with us for a while. I had three twenty-one day cycles of the worst chemo drugs imaginable (Etopiside, Bleomycin and Cisplatin). I was very sick from the chemotherapy. All of my hair fell out and I always nauseous and tired.
Now, three years later I am the happiest I have ever been in my life; the happiest I have ever been with my inner self. Sure, I still have some really bad days. Days when I fear getting sick again and days when I feel that my friends have no burdens of their own. I know I have climbed mountains and everyday gets a bit easier. I continue to move further and further away from those horrible days three years ago. I realize how truly blessed we all are to have life. I realize how lucky I am to be in this world, to have my strong, supportive, and sometimes loving family (LOL) and so many old and new totally amazing friends.