Disclaimer:

This is my story and my journey; these are my viewes and my opinions only! I am not, nor do I profess to be a doctor, or a theologian. Please use your own discretion when reading these posts. I didn't survive cancer to die of stress!



Sunday, April 11, 2010

Courage

Life continues to treat me well.

Courage doesn't always roar. Sometimes courage is the little voice at the end of the day that says I'll try again tomorrow. -Mary Anne Radmacher

God has given me some instances in my own life and journey that have revealed to me the meaning of courage. From little things like learning to advocate and share my experiences with ovarian cancer with my head held high (while inside wanting to forget it ever happened) is courage. I don't always get it right. So for those of you who know me know that I am far from perfect. I don't always do the right thing, think the right thing, say the right thing or make the right decisions. I may let my fears get my mood down in a way that makes me miss the blessings of the day. And a simple conversation I have to answer someone's questions may sink me so far into my experience emotionally that I can't get over the memories of the pain and anguish for days. But I don't have the luxury to sit at home and cry. I have to face those emotions and my fears (recurrence), regroup, get up, and get to work. I also have to remember that my experience with cancer was not only to build my resilience and my reliance and trust in God, but also to be able to understand the suffering of others in whatever forms it comes, to be able to relate more to the people I encounter during my life, to understand their pain and their suffering. (That one has taken me four years to realize) And hey even if I don't get it right, I get to try again. Now that's courage to me.

Wednesday, March 31, 2010

No longer "The Silent Killer”

Ovarian cancer can no longer be called "The Silent Killer." Symptoms are often subtle, but they are not silent. Women with ovarian cancer DO have symptoms, even in the early stages.
Early symptoms of ovarian cancer often include abdominal bloating, pelvic or abdominal pain, trouble eating or feeling full quickly, and feeling the need to urinate urgently or often. Other symptoms of ovarian cancer can include fatigue, upset stomach or heartburn, back pain, pain during sex, and constipation or menstrual changes. As you can imagine, these symptoms can be caused by a variety of benign conditions, which is why ovarian cancer is often misdiagnosed in its early stages. After all, most women experience some of these symptoms at some point in their lives! The most important thing to keep in mind is that women should see their doctors if they experience these symptoms for longer than two weeks, and if any of these symptoms are new to them. Some other things to remember are a Pap test does not detect ovarian cancer, and there is currently no vaccine.
It is important for all of us to be persistent with our doctors about our health care. Keep the lines of communication open, and be sure to mention any unusual symptoms you may be experiencing. Don’t be afraid to talk about how you are feeling. Don’t be afraid to break the silence.

Monday, March 29, 2010

Daily Meditation

The LORD has done great things for us, And we are glad. Psalm 126:3


Saturday, March 20, 2010

Reflections…

As an ovarian cancer survivor it took a long time for me to tell my story. Now it’s hard to get me not to talk about it. Not everyone is comfortable sharing their story. That is all good, I can get with that, and there are still some parts of my cancer experience that are too personal to share. Every survivor has a story. Just like being pregnant everyone's cancer experience is different, meds treat people differently, side effects are different, psychological and physical effects are different. Cancer can consume you if you let it, taking over your every thought and everything around you. I know the hold this disease can have over you, your friends, and your family. Some days I would feel like I could crawl inside myself and hide, like no one else in the world could possibly feel like I did. Some days I would go into work and try to hide being upset and think that my co workers would think "oh there goes cancer girl", upset over… (fill in the blank.) It’s said that a positive mental attitude can go a long way. And I agree. Get cancer, your life changes drastically. Values change. Friends change. Thoughts change. Long term plans change. The resentment is unbelievable – once you’ve had cancer YOURSELF, life is totally different. It almost seems like we ought to be able to just have a holiday. Take a long break. But of course we can’t. We (like everyone else) have to work. We have to pay bills. We have to deal with everyday ups and downs, highs and lows. But it’s hard, as we feel like our lives are short and WHY should we have to bother with these things? Meanwhile, back at the ranch I’ve found in life you always want a flawless ending. But I’ve learned the hard way, that some poems don’t rhyme and some stories don’t have a clear beginning, middle or end. Life is about not knowing, having to change, seizing the moment and making the best of it, without knowing what’s around the next corner... oh well that’s LIFE… the uncertainty of it all.


T.E.A.L
Take Early Action and Live

Wednesday, March 17, 2010

On this my "cancerversary"!

Never give up... never surrender… Four years now and cancer-free! Feeling great and looking forward to at least 60 more! Thanks to the many family and friends who supported me, prayed for me, and were just there for me. “Don’t pray it were easier, pray you were better. Don’t pray for fewer problems, pray for more skills. Don’t pray for fewer challenges, pray for more wisdom.”

Kim E.

Sunday, February 21, 2010

In Memoriam Dorothy Smith Simmons

I know I haven't posted in awhile but life continues to treat me well. Today I am wearing pink in honor of my wonderful/beautiful mother who lost a very courageous battle with breast cancer 15 years ago. Train up a child in the way he should go: and when he is old, he will not depart from it. Proverbs 22:6 KJV  Thank you Mommie for all you did, Peace In Rest (PIR).

Thursday, December 3, 2009

Ovarian Cancer Patients Have Lower Death Risk When Treated By Experts

Women with ovarian cancer are less likely to die from their disease if they are treated by specialist gynecological oncologists than if they are cared for by general gynecologists, according to the results of a study carried out in Scotland, UK, and reported at this week's 16th International Meeting of the European Society of Gynecological Oncology (ESGO) in Belgrade, Serbia.

An analysis of survival data from a cohort of 912 ovarian cancer patients treated in the West of Scotland Managed Clinical Network showed a 24% lower risk of death in women treated by gynecological oncologists who specialize in the treatment of gynecological cancer than by general gynecologists who treat the full range of gynecological problems that women can experience.

Reporting her findings at a late breaker session of the congress, Dr Alex Stirling, from the West of Scotland Cancer Surveillance Unit, explained that recent reorganization of cancer services in Scotland was designed to provide equal standards of care for patients wherever they lived. However, some women continue to be treated away from larger cancer centers, and do not therefore have access to gynecological oncologists.

Dr Stirling added that, by the end of the year, cancer services in the area will be centralized, and selection of cases for surgery will be decided by a specialist multidisciplinary team - hopefully helping to reduce remaining inequalities of care and ensuring that more difficult cases are treated by gynecological oncologists.

Source
European Society of Gynecological Oncology

Sunday, November 15, 2009

Passage of House Health Reform Potential Impact for Women with Ovarian Cancer

With the passage of the Affordable Health Care for America Act (H.R. 3962) in the House of Representatives this past weekend, women with ovarian cancer and their families may be wondering how this bill will affect their health care coverage. Listed below are some major provisions of the bill. The House bill is not the final Health Reform bill – we will not know what final provisions will be enacted until a joint bill is passed by both Houses.

Most Americans will be required to have insurance
•The bill will require all individuals to have health insurance and will levy a penalty on those without coverage, starting in 2013. Exceptions will be granted for religious or financial reasons.
•Health Insurance Exchanges will be organized. Individuals who do not already receive health insurance through their employer may purchase health insurance through Health Insurance Exchanges. These exchanges will offer insurance plans that include a minimum benefits package and comply with other cost and quality standards.
Benefits
•Requires coverage for individuals with pre-existing conditions. Additionally, no insurers will be allowed to put annual policy limits or lifetime policy limits into effect or cancel a policy when individuals file expensive claims.
•Insurance Companies prohibited from charging women more based on gender. A practice known as gender rating, where women are often forced to pay higher premiums for the same coverage men receive will be eliminated.
•Eliminates Cost-Sharing for preventive services in Medicare and Medicaid including mammograms and Pap tests.
•Provides wellness grants for small employers to implement a qualified wellness program.
Coverage
•Employers will have to offer coverage to employees and pay for a majority of the premium costs.
•A national “Health Insurance Exchange” will be created for individuals who do not already receive health insurance through their employer. Additionally, states that comply with federal standards will be eligible to run their own health insurance exchanges. Within the exchanges, insurance plans provided by private companies will be available for purchase, as well as a competing government-run health insurance plan.
•Individuals who currently are uninsured, have expensive coverage through an individual plan, or who work for small businesses may seek a health insurance plan through the Exchange over the next few years.
•Individuals and families can purchase insurance on the exchange if they are not covered by employer-sponsored insurance or if they do not have other federal insurance including Medicare, Medicaid, TRICARE or Veteran Affairs (VA) coverage.
•If a person is a full-time employee receiving coverage through their work, they will not be able to shop for insurance through the Exchange unless their employee-provided coverage accounts for more than 12% of their income. By 2015, the Secretary of Health will determine whether employees of large businesses may enter the Exchange.
Cost
•Low and middle-income individuals will receive a federal subsidy to enable them to afford their purchase of health insurance. Financial assistance to pay for health insurance will be provided to families with incomes up to 400 percent of the Federal Poverty Level. For example, assistance will be provided to a family of four with an income below $88,200. (Visit the Federal Poverty Guidelines to see more).
•The bill places caps on out-of-pocket spending. Individuals will have annual out-of-pocket spending limits of $5,000 per year, and families will have annual out-of-pocket spending limits of $10,000 per year. Lower-income individuals and families with incomes below 350 percent of the Federal Poverty Level will have lower out-of-pocket limits.
•Small businesses will receive a tax credit to assist them in offering health insurance to their employees.
Changes to Existing Programs
•Medicare Part D Gap will be reduced and eventually eliminated. There will be a $500 reduction in the coverage gap (also known as the Medicare Part D “doughnut hole”). By 2019, the “doughnut hole” will be completely eliminated.
•Provides a discount on brand name drugs purchased through Medicare.
•COBRA coverage may be retained until the exchange is established.
•Provides numerous incentives for coordination of care, enactment of alternative medical liability laws, administrative simplicity and use of comparative effectiveness determinations.
What’s next?
Health care reform is far from over. First, the Senate must pass either this bill or its own bill. Next, a Conference Committee must be formed to combine the House and Senate bills. Then that combined bill must be voted on by both the House and Senate. Once passed, the bill will be signed by the President. Many do not expect the President to sign a health reform bill until February, 2010.

Article courtsey of the Ovarian National Alliance.