Disclaimer:

This is my story and my journey; these are my viewes and my opinions only! I am not, nor do I profess to be a doctor, or a theologian. Please use your own discretion when reading these posts. I didn't survive cancer to die of stress!



Thursday, December 3, 2009

Ovarian Cancer Patients Have Lower Death Risk When Treated By Experts

Women with ovarian cancer are less likely to die from their disease if they are treated by specialist gynecological oncologists than if they are cared for by general gynecologists, according to the results of a study carried out in Scotland, UK, and reported at this week's 16th International Meeting of the European Society of Gynecological Oncology (ESGO) in Belgrade, Serbia.

An analysis of survival data from a cohort of 912 ovarian cancer patients treated in the West of Scotland Managed Clinical Network showed a 24% lower risk of death in women treated by gynecological oncologists who specialize in the treatment of gynecological cancer than by general gynecologists who treat the full range of gynecological problems that women can experience.

Reporting her findings at a late breaker session of the congress, Dr Alex Stirling, from the West of Scotland Cancer Surveillance Unit, explained that recent reorganization of cancer services in Scotland was designed to provide equal standards of care for patients wherever they lived. However, some women continue to be treated away from larger cancer centers, and do not therefore have access to gynecological oncologists.

Dr Stirling added that, by the end of the year, cancer services in the area will be centralized, and selection of cases for surgery will be decided by a specialist multidisciplinary team - hopefully helping to reduce remaining inequalities of care and ensuring that more difficult cases are treated by gynecological oncologists.

Source
European Society of Gynecological Oncology

Sunday, November 15, 2009

Passage of House Health Reform Potential Impact for Women with Ovarian Cancer

With the passage of the Affordable Health Care for America Act (H.R. 3962) in the House of Representatives this past weekend, women with ovarian cancer and their families may be wondering how this bill will affect their health care coverage. Listed below are some major provisions of the bill. The House bill is not the final Health Reform bill – we will not know what final provisions will be enacted until a joint bill is passed by both Houses.

Most Americans will be required to have insurance
•The bill will require all individuals to have health insurance and will levy a penalty on those without coverage, starting in 2013. Exceptions will be granted for religious or financial reasons.
•Health Insurance Exchanges will be organized. Individuals who do not already receive health insurance through their employer may purchase health insurance through Health Insurance Exchanges. These exchanges will offer insurance plans that include a minimum benefits package and comply with other cost and quality standards.
Benefits
•Requires coverage for individuals with pre-existing conditions. Additionally, no insurers will be allowed to put annual policy limits or lifetime policy limits into effect or cancel a policy when individuals file expensive claims.
•Insurance Companies prohibited from charging women more based on gender. A practice known as gender rating, where women are often forced to pay higher premiums for the same coverage men receive will be eliminated.
•Eliminates Cost-Sharing for preventive services in Medicare and Medicaid including mammograms and Pap tests.
•Provides wellness grants for small employers to implement a qualified wellness program.
Coverage
•Employers will have to offer coverage to employees and pay for a majority of the premium costs.
•A national “Health Insurance Exchange” will be created for individuals who do not already receive health insurance through their employer. Additionally, states that comply with federal standards will be eligible to run their own health insurance exchanges. Within the exchanges, insurance plans provided by private companies will be available for purchase, as well as a competing government-run health insurance plan.
•Individuals who currently are uninsured, have expensive coverage through an individual plan, or who work for small businesses may seek a health insurance plan through the Exchange over the next few years.
•Individuals and families can purchase insurance on the exchange if they are not covered by employer-sponsored insurance or if they do not have other federal insurance including Medicare, Medicaid, TRICARE or Veteran Affairs (VA) coverage.
•If a person is a full-time employee receiving coverage through their work, they will not be able to shop for insurance through the Exchange unless their employee-provided coverage accounts for more than 12% of their income. By 2015, the Secretary of Health will determine whether employees of large businesses may enter the Exchange.
Cost
•Low and middle-income individuals will receive a federal subsidy to enable them to afford their purchase of health insurance. Financial assistance to pay for health insurance will be provided to families with incomes up to 400 percent of the Federal Poverty Level. For example, assistance will be provided to a family of four with an income below $88,200. (Visit the Federal Poverty Guidelines to see more).
•The bill places caps on out-of-pocket spending. Individuals will have annual out-of-pocket spending limits of $5,000 per year, and families will have annual out-of-pocket spending limits of $10,000 per year. Lower-income individuals and families with incomes below 350 percent of the Federal Poverty Level will have lower out-of-pocket limits.
•Small businesses will receive a tax credit to assist them in offering health insurance to their employees.
Changes to Existing Programs
•Medicare Part D Gap will be reduced and eventually eliminated. There will be a $500 reduction in the coverage gap (also known as the Medicare Part D “doughnut hole”). By 2019, the “doughnut hole” will be completely eliminated.
•Provides a discount on brand name drugs purchased through Medicare.
•COBRA coverage may be retained until the exchange is established.
•Provides numerous incentives for coordination of care, enactment of alternative medical liability laws, administrative simplicity and use of comparative effectiveness determinations.
What’s next?
Health care reform is far from over. First, the Senate must pass either this bill or its own bill. Next, a Conference Committee must be formed to combine the House and Senate bills. Then that combined bill must be voted on by both the House and Senate. Once passed, the bill will be signed by the President. Many do not expect the President to sign a health reform bill until February, 2010.

Article courtsey of the Ovarian National Alliance.

Wednesday, November 11, 2009

Take Charge!

What I have realized through this experience is that we as women need to take charge of our own health care. Just because a physician tells you, does not mean you should accept it as gospel if you still feel like something is wrong. We as women know our bodies and must trust our own instincts when we think something is wrong. Get a second, third fourth or even a fifth opinion. Also ask as many questions as you need and if you are not comfortable with the answers find a new doctor. We should also share information, sharing information on ovarian cancer helps raise awareness, and will help you or someone you know get a much earlier diagnosis. Early diagnosis makes a huge difference. Again, I want to encourage all women to take charge of your health, for we know our bodies best!

This is God’s day. My faith gives me power. My prayers and all those that are praying for me give me strength. Amen

Tuesday, November 3, 2009

The 411 on the seasonal flu and H1N1

What Ovarian Cancer Survivors Need To Know
Together with the White House, the Ovarian Cancer National Alliance participated in a discussion about the flu, both seasonal and the H1N1 viruses. The discussion was led by cancer and vaccine experts at the Center for Disease Control and Prevention (CDC).
Women with ovarian cancer have a higher chance of having complications from the flu virus. As a result, the Ovarian Cancer National Alliance advises you to read the information provided below and consult your doctor about what actions you should take to protect yourself.

Prevention

How can I protect myself from getting the flu?
Experts suggest vaccination. In addition, you should wash your hands frequently and avoid touching your face.

Why are there two vaccines this year?
There are two vaccines for two different types of flus this year. One is the seasonal flu, the other is H1N1 (commonly referred to as “swine flu”). Both vaccines are made through the same process, and should have the same efficacy against the viruses. As in previous years, anyone allergic to eggs should not receive the shot form of the vaccine.

If I am an ovarian cancer survivor, can I get the nasal spray/mist? Should my family members that I am in close contact with get the nasal spray/mist?
People with compromised immune systems, including people in treatment or with a history of cancer should not get the nasal spray. The nasal spray vaccine contains weakened live viruses. These people should only get the shot, which contains dead viruses.

Individuals who do not have compromised immune systems, including caregivers of those with cancer, may opt to have the nasal spray vaccine. The nasal spray/mist has only been approved for use in people 2-49 years of age who are not pregnant and do not have compromised immune systems.

If I am an ovarian cancer survivor and am not in treatment, should I get a flu vaccine?
Medical experts recommend that if you have a history of cancer you should receive both the seasonal flu shot and the H1N1 shot (not the nasal spray/mist). People with a history of cancer are at high risk of complications from the flu.

If I am in treatment for ovarian cancer, should I get the flu vaccine?
If you are in treatment for cancer, medical experts recommend that you receive both the seasonal flu shot and the H1N1 shot (not the nasal spray/mist). Dr. Bill Atkinson, vaccine expert at the Center for Disease Control and Prevention (CDC), recommends that if you receive your vaccination while receiving chemotherapy, you should confer with your doctor about getting re-vaccinated following treatment. There is no evidence that the flu shot will affect the efficacy of chemotherapy.

How do I get the vaccines?
Call your doctor to see what s/he can offer. The H1N1 vaccine is being distributed to states through the federal government, which purchased the vaccine. The seasonal flu vaccine is likely available at your doctor’s office, but may be found in retail stores such as pharmacies and grocery stores. The H1N1 vaccine is paid for by the federal government, but your provider may charge an administrative fee. If your provider does not offer the H1N1 vaccine, call your State Department of Health.

After I get vaccinated, what should I do?
1) Create a written record of your cancer and the treatment you are receiving and keep this information with you at all times.
2) Create a legible list of your medications and the time of day they are taken.
3) Keep your doctor’s name, contact information, and office address with you at all times.
4) Continue taking prescribed medications even if you are sick with the flu unless your doctor says otherwise.
5) Be alert to changes in your breathing and contact your doctor immediately if you notice changes.

The Flu

What are the symptoms of the flu?
Seasonal flu symptoms may include fever, coughing, sore throat, runny or stuffy nose, headaches, body aches, chills and fatigue. In the case of the H1N1 flu, symptoms may also include vomiting and diarrhea. If you get these symptoms and have a condition that would put you at increased risk of complications, such as ovarian cancer, call your health care provider.

Additionally, see your doctor immediately if you experience dizziness, confusion, severe/persistent vomiting, rapid breathing, shortness of breath, difficulty breathing or flu like symptoms that get better and then worse – this may indicate a secondary infection.

If your child has a bluish skin color, is not drinking fluids, lethargic, irritable, and/or has a rash, consult your doctor.

If I get the flu, what type of treatment can I get?
If you are diagnosed with ovarian cancer, you can receive anti-viral treatments, such as Tami flu and Rolenza. Please see your doctor for treatment options, as not everyone will need or be eligible for treatment.

If I get the flu, what should I do?
Call your doctor to see what s/he recommends in terms of treatment. It is also advised that you stay home as to not spread the flu virus and infect others. If you must go out, consider a face mask.

If I am in treatment and I think I have the flu, what should I do?
Call your doctor immediately. Your doctor will likely recommend anti-viral treatment, and the flu may affect your ability to receive chemotherapy on schedule.

This article was taken from the November 2009 Ovarian Cancer National Alliance nwsletter.

Saturday, October 31, 2009

Think PINK

On the final day of Breast Cancer Awareness month...think PINK and remember those who are battling this terrible disease, those who have battled this terrible disease and won, those we have lost the battle to this terrible disease, and the loved ones who lost someone to this terrible disease...






Friday, October 30, 2009

Decisions

Decisions become easier when your decision to please God outweighs your will to please the world" Anso Coetzer

 Philippians 4:6-7
Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.

Thursday, October 29, 2009

The Reasons Why I Share My Story

I share my story because I have joined the sisterhood of ovarian cancer survivors. I share my story because I like so many other women who have endured the shock of having ovarian cancer, battling ovarian cancer with the surgeries and chemotherapy treatments and the continual fear of ovarian cancer recurring have a story to tell. I share my story so that women of all ages are reminded of how important it is to always be aware of the very subtle warning signs of ovarian cancer. I share my story in the hope that if you do experience unusual symptoms (bloating, pelvic, or abdominal pain, difficulty eating, feeling full quickly, and feeling a frequent or urgent need to urinate); you will seek medical attention even though you might be fearful of the results. I share my story so that we as a sisterhood of women can become better educated regarding the facts and correct treatments of ovarian cancer so that unnecessary risks are avoided.
I share my story because I am excited about the new research in ovarian cancer which is leading us towards more effective screening tools and better treatment. I share my story because of the pain and sadness I have felt when I hear about “Sisters” who have lost their battle or are losing their battle against this dreaded disease. I share my story because I have been overcome by fear and anxiety as I await results of blood work every six months, wondering if my cancer has come back. I share my story because as horrible as this disease is, I wouldn’t trade anything for this journey. (I know that sounds crazy.) I share my story because I will continue to fight this monster called ovarian cancer so maybe someone else will have a chance of an early diagnosis, which will lead to a very long remission.

God is our refuge and strength, a very present help in trouble. Psalm 46:1

Wednesday, October 28, 2009

I can smile today, because I woke up!

It took me a while to come around to the thought that cancer would be a part of my life forever. I am so very thankful and appreciative of my husband’s and friends love and support. Being a cancer survivor has also helped me to be thankful and appreciative of all the small things in life. There are a million little things I notice and appreciate now, like strawberry cupcakes from your favorite bakery, when someone tells a funny joke and you almost pee your pants or when it’s raining very hard and you run outside to get the mail and you get completely soaked and you don’t even care. I made it through the night and woke up to a brand new day! "I can smile today, because I woke up!” Stir up the gift of God which is with you.
2 Timothy 1:6 Therefore I remind you to stir up the gift of God which is in you through the laying on of my hands.

Tuesday, October 27, 2009

Patience

While going through my cancer battle I came to the realization that there are three types of people who battle cancer:
1. The person who throws up his or her hands and gives up.
2. The person who digs in his or her heels for a battle but gives out of steam before it's over.
3. The person who acknowledges that fighting cancer is a lengthy, tiring ordeal and decides to stick it out and fight anyway.
So as much as I wanted my battle to be over and done with and for things in my life to get back to normal, I couldn’t predict how long it would take for God to heal me. It could have been weeks, months, or even years. All I knew at that time was I was impatient and wanted things done yesterday, so the prospect of something taking years was not very attractive to me. My prayer at that time was that God would grant me patience and give me peace while He healed me in whatever way He saw fit. So for those of you who are struggling with being impatient don’t be so eager to reach the milestones know that the race is not given to the swift or the strong but to those who endure to the end.

Colossians 1:10-11
And we pray this in order that you may live a life worthy of the Lord and may please him in every way: bearing fruit in every good work, growing in the knowledge of God, being strengthened with all power according to his glorious might so that you may have great endurance and patience

Monday, October 26, 2009

I’m so glad trouble don’t last always

Today's title comes from the words of a Negro spiritual. And although not grammatically correct, the lyrics are true. I know that things are not ideal now, but a better day is ahead. Sight constantly reminds us of all the obstacles we face in life, the impossibilities, and the hardships! You might as well give up! Whereas faith assures us though things are rough now, there’s a stronger force out there working in our favor to turn things around. No, we can’t see it, but if you’re a believer, you feel it and TRUST that it’s there. I do faithfully believe, no, I KNOW, that God is with me every step of the way.
2nd Corinthians 5:7
For we walk by faith, not by sight.

Wednesday, October 21, 2009

The tongue can be your worst enemy!

Your words, your dreams, and your thoughts have power to create conditions in your life. What you speak about, you can bring about. If you keep saying you can't stand your job, you might lose your job. If you keep saying you can't stand your body, your body can become sick. If you keep saying you can't stand your car, your car could be stolen or just stop operating. If you keep saying you're broke, guess what? You'll always be broke. If you keep saying you can't trust a man or trust a woman, you will always find someone in your life to hurt and betray you. If you keep saying you can't find a job, you will remain unemployed. If you keep saying you can't find someone to love you or believe in you, your very thought will attract more experiences to confirm your beliefs. If you keep talking about a divorce or break up in a relationship, then you might end up with it.
Turn your thoughts and conversations around to be more positive and power-packed with faith, hope, love, and action. Don't be afraid to believe that you can have what you want and deserve. Watch your thoughts, they become words. Watch your words, they become actions. Watch your actions, they become habits. Watch your habits, they become character. Watch your character, for it becomes your destiny. Watch how your circumstances and situations begin to change when you change the way you speak.
The minute you settle for less than you deserve, you get even less than you settle for.

Tuesday, October 20, 2009

In Memoriam

Rest in peace Frankie Harrell.  I rejoice in the knowledge that we will meet again. There is no cancer in heaven. Only love.

Trust in the LORD with all thine heart; and lean not unto thine own understanding.  In all thy ways acknowledge him, and he shall direct thy paths. Proverbs 3:5-6 (KJV)

Thursday, October 15, 2009

It’s not what you know, it’s who you know.

You're waiting for that magical day when someone makes the connection and recognizes who you really are. Maybe they'll first catch the sparkle in your eye. Or perhaps they'll marvel at your insights and the depth of your spirit. Someone who will help you connect the dots, believe in yourself, and make sense of it all. Someone who will understand you, approve of you, and unhesitatingly give you a leg up so that life can pluck your ready, ripened self from the branch of magnificence. Well, I'm here to tell you, your wait is over. That someone is you!
Just proving that age-old adage “It’s not what you know, it’s who you know”.

Ovarian Cancer, it's personal stuff but we still need some answers. Visit your doctor and don't be embarrassed. Survival begins with exams and awareness.

Wednesday, October 14, 2009

It’s my birthday!

I always think of birthdays as personal holidays, and I always take a vacation day from work - that's one of my birthday gifts to myself. Since my parents have both passed I am usually the one who celebrates my birthday telling every and anyone who will listen that “It’s my birthday!” and having cake. Of course I’m celebrating It’s my birthday! I am another year older, wiser, and more grateful. So…today I’m going to be around people who matter to me, have some cake, maybe treat myself to a massage and a new pair of shoes or two or three who knows (tee hee hee). It’s my birthday! It’s my birthday!

Tuesday, October 13, 2009

Thought for the day...

Be the kind of women that when your feet hit the floor each morning the devil says~~"Oh Crap, She's Up!"

Monday, October 12, 2009

Cancer and my STRENGTH!

Folk have no idea until they themselves go through it. No one knows the emotion of love till they find it, the loneliness of death until a loved one is gone, and the triumph of defeat until they win. I can't begin to tell you the emotional roller coaster life and cancer has taken me on. To have lost my dear Auntie Nora (my Libra sister) three days before my cancer diagnosis, she was my usual source of strength and support since my parents death; to have felt constantly unwell always nauseous and tired, to have lost all your body hair, to have feared. These represented only a small fraction of the experiences that confronted me. I knew GOD would not give me anything more than I could handle… but I never dreamed HE had so much confidence in me. Thank you LORD for reminding me that YOU are in control of ALL THINGS! The stuff that makes me feel good about myself is your gift to me...and the stuff that I have to struggle through is also a gift; because it makes me stronger. Gospel singer Maurette Brown-Clark has a song that says "It ain't over...until GOD says it's over"… Anyone can give up; it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength.
The LORD is good, a refuge in times of trouble. He cares for those who trust in him… Nahum 1:7
Happy Birthday Auntie Nora, miss you! Peace in Rest!
Maurette Brown Clark~ It Ain't Over

Sunday, October 11, 2009

Sisters...

Life is too short to wake up with regrets.
So love the people who treat you right.
Love the ones who don't just because you can.
Believe everything happens for a reason
If you get a second chance, grab it with both hands.
If it changes your life, let it.
Kiss slowly.
Forgive quickly.
God never said life would be easy.
He just promised it would be worth it.

Saturday, October 10, 2009

My Wish for you...

Comfort on difficult days, smiles when sadness intrudes, rainbows to follow the clouds, laughter to kiss your lips, sunsets to warm your heart, hugs when spirits sag, beauty for your eyes to see, friendships to brighten your being, faith so that you can believe, confidence for when you doubt, courage to know yourself, patience to accept the truth, Love to complete your life.”




Friday, October 9, 2009

"Why?"

I sometimes find myself asking the question, "Why?" Not so much why I was the one to get cancer, but rather, why I am the one who survived; the one who got a second chance? The only answer I can find is that we are all in this world for a reason. I think I am here to make some laugh and to make some cry. I would love to think that I am here to make some see that life is too short to be wasted and too precious to be ignored. Throughout this experience I have realized my own strengths. I fought this disease with everything I had and even though I lost things doing it: a year of my life, my hair (I know it’s just hair but wait until you lose it, or as mine did fall out in patches) friendships and the ability to have children, I have gained some things that are far more valuable, a renewed faith and a passion for life. I have gone through something only some ever will. Having cancer does not mean your life is over. Rather, it means it has just begun. Mine has anyway. I wish to make others see this too. Life after cancer is possible. It is possible to have this disease, fight it, and move on to live!
Dear God, you changed my fears to faith, my reluctance to resolve, and my uneasiness to peace. I give you thanks for your transforming power in my life. Help me to be a doer of your word, promoting spiritual growth and development in my life. Amen!

Thursday, October 8, 2009

The Ovarian Cancer National Alliance introduces the Interim Practice Guidance and the Symptom Diary in the U.S.

Washington, D.C. – October 5, 2009. In a bold effort to provide women and their doctors with better information about how and when to take the necessary steps to obtain an early diagnosis for ovarian cancer, the Ovarian Cancer National Alliance has taken the lead in posting guidance for diagnoses on its web site. The Interim Practice Guidance, endorsed by prominent specialists in the field of gynecologic cancer, marks the first time ovarian cancer diagnostic protocols have been made available to the public. In addition to the guidance, a Symptom Diary that helps women measure the persistency and severity of their symptoms (initially developed in the United Kingdom by Ovarian Cancer Action), has been reproduced in conjunction with the Gynecologic Cancer Foundation, with permission for use in the United States.

For the full article and a downloable Tool Kit, http://www.ovariancancer.org/diary/

Friday, October 2, 2009

In Memoriam

Rest in peace Valerie Dial Thomas.  I rejoice in the knowledge that we will meet again. There is no cancer in heaven. Only love.  Come to me all that labor and are heavy laden and I will give you peace. Matthew 11:28

Thursday, October 1, 2009

“Just give us the facts. Just the facts.”

I did a very informative ovarian cancer lunch and learn at my job on Tuesday 9/29/2009. We had so many question and comments from women like “Doesn’t a pap diagnose ovarian cancer?”, “My daughter got a shot and her doctor said it was for ovarian cancer.” and “I had a partial hysterectomy can I still get ovarian cancer?” My TEAL warriors we have our work cut out for us. I have pledge that as long as I have breath in my body I will SHOUT about the symptoms and risk factors and dispel all the myths of ovarian cancer. Fact based awareness is how I am going to educate women from now on. As Sgt. Joe Friday on the popular 60’s police drama said “Just give us the facts. Just the facts.” Like a Pap smear does not diagnose ovarian cancer, currently there is no shot against ovarian cancer, for cervical cancer there is a shot but not for ovarian cancer and a partial, hysterectomy removes only the upper two-thirds of the uterus. The ovaries, fallopian tubes and cervix are not removed and yes you can still get ovarian cancer. I hope that educating women on the facts of ovarian cancer will help with early detection, reduction of risks and help with finding correct treatment options for them.


Wednesday, September 30, 2009

The fight continues!





Today is the last day of Ovarian Cancer Awareness month. But for those of us who are soldiers in the war on ovarian cancer awareness the fight continues. Awareness never ends! 

Tuesday, September 29, 2009

Today is TEAL Tuesday, TEAL we find a cure!!

As an ovarian cancer survivor I am an advocate of awareness, education and research. Early detection and a CURE are my passion. Stir up the gift of God which is with you. 2 Timothy 1:6



Monday, September 28, 2009

I can smile today, because I woke up!!

It took me a while to come around to the thought that cancer would be a part of my life forever. Being a cancer survivor has helped me to be thankful and appreciative of all the small things in life. There are a million little things I notice and appreciate. Like a comfortable Spring-like or Autumn-like day, eating chocolate, hugs, sunshine and a kiss. I am thankful and appreciative of my husband’s love and support, my family, friends, co-workers and laughter for healing the soul. I made it through the night and woke up to a brand new day!!"I can smile today, because I woke up!!" Make today awesome!
Stir up the gift of God which is with you. 2 Timothy 1:6

Sunday, September 27, 2009

Facts about Ovarian Cancer

**Ovarian cancer is a serious and under-recognized threat to women's health.
**Ovarian cancer, the deadliest of the gynecologic cancers, is the fifth leading cause of cancer death among U.S. women.
**Ovarian cancer occurs in 1 out of 57 women.
**It is expected that 20,180 women will be diagnosed in 2009.
**An estimated 15,310 American women will die from ovarian cancer in 2009.
**Currently, 50% of the women diagnosed with ovarian cancer die from it within five years; among African American women only 48 percent survive five years or more.
**Ovarian cancer is very treatable when it is detected early, but the vast majority of cases are not diagnosed until the cancer has spread beyond the ovaries.
**In cases where ovarian cancer is detected before it has spread beyond the ovaries, more than 90% of women will survive longer than five years.
**Only 25% of ovarian cancer cases in the U.S. are diagnosed in the early stages.
**When diagnosed in advanced stages, the chance of five-year survival is only about 25%.
**Raising public awareness of ovarian cancer by educating doctors and women about the disease could save lives.
**More ovarian cancer research is needed- to develop early detection tools, better therapies, cures, and to prevent the disease.
**Much more needs to be learned about what causes ovarian cancer and how to prevent it.
**90% of women diagnosed do not have a family history that puts them at higher risk.
**Ovarian cancer research is DRASTICALLY UNDER-FUNDED. The National Cancer Institute (NCI) spent close to $70 million in 2001 on ovarian cancer research, $407.5 million on breast cancer research, $150.3 million on lung cancer research, and $136.5 million on prostate cancer.

Turning this whisper into a SHOUT!!!

Tuesday, September 22, 2009

Separating fact from fiction ,if you or someone you know have ovaries PLEASE READ!!!!

Myth: The Pap test can diagnose ovarian cancer.
Fact: A Pap test only diagnoses cancer of the cervix (the opening of the uterus).

Myth: Ovarian cancer has no symptoms.
Fact: Symptoms may include persistent and progressive abdominal pain, bloating, or discomfort; nausea, indigestion, or gas; urinary frequency; constipation, or diarrhea; abnormal vaginal bleeding; unusual fatigue; unexplained weight loss or gain; and shortness of breath. There may also be pain with intercourse. Most symptoms are not gynecologic.

Myth: There are no risk factors for ovarian cancer.
Fact: Risk factors for this disease include increasing age; family history of ovarian, breast, or colorectal cancer; personal history of breast cancer; never bearing a child or having a child later in life; and using talc in the genital area for several years. Use of high-dose estrogen without progesterone for long periods of time (10 years) is a risk factor. However, today combination therapy (estrogen and progesterone) is more common.

Myth: A high CA-125 blood level always indicates ovarian cancer.
Fact: It is not uncommon for pre-menopausal women to have a high CA-125 level because of non-cancerous conditions such as uterine fibroids, inflammation of the fallopian tubes, or endometriosis. The CA-125 blood test is more accurate in post-menopausal women. Currently, no screening test is 100% accurate in detecting ovarian cancer.

Myth: If ovarian cancer does not run in my family, I cannot get it.
Fact: All women are at risk for ovarian cancer. Only 10% of cases are hereditary (inherited).

Myth: Ovarian cancer has no cure.
Fact: If ovarian cancer is detected early and treated properly, there is a 90% chance of survival for at least five years. However, only about one quarter of ovarian cancer cases are diagnosed early. Late diagnosis is associated with significantly lower survival rates—about 25%.

Myth: Women who have their ovaries removed cannot get ovarian cancer.
Fact: Women who have their ovaries removed can't get ovarian cancer unless a bit of undetected cancer spread before the removal. This is a rare event. In addition, a rare type of cancer called primary peritoneal carcinoma, a close relative of ovarian cancer, can develop when there are no ovaries. Primary peritoneal carcinoma starts in the inside lining of the abdomen and pelvis. It looks similar to ovarian cancer under the microscope. It also has the same symptoms, spreads in a similar pattern, and is treated the same way as ovarian cancer.

Myth: Ovarian cancer can be prevented.
Fact: Currently, there is no way to prevent ovarian cancer with 100% certainty. However, several things can help reduce the risk:
-Prophylactic oophorectomy—having both ovaries removed along with the fallopian tubes as a preventive measure—can reduce risk by more than 80%.
-Taking oral contraceptives for at least five years can reduce risk by 50%
-Pregnancy and breast-feeding, tubal ligation (tying the fallopian tubes), and hysterectomy (removal of the uterus) can all reduce risk.

Myth: Having ovarian cysts increase your risk of ovarian cancer.
Fact: Most cysts develop from the changes in hormone levels during the menstrual cycle and the production and release of eggs from the ovaries. Most cysts are harmless and go away on their own. However, some can be cancerous.

Note: If you find yourself in the greater Atlanta Georgia area on Saturday September 26, 2009 come out to the Georgia Ovarian Cancer Alliance “Overcome Ovarian Cancer” 5k walk at 9:00am at Sanctuary Park in Alpharetta. Come out and join us for this year's event. It will be a truly exciting and successful day for gynecological cancer survivors, their families, caregivers and friends and you need to be a part of it all. Visit gaovariancancer.org for more information!

Monday, September 21, 2009

My Inspiration

My inspiration during this my cancer journey has been God, Jesus Christ my personal savior and myself Kimberly Marshon Simmons-Emory. Wow, never a million years did I think I would be an inspiration to me. When I would think about people who inspire, me Kimberly Marshon Simmons-Emory was never at the top of the list or even in the top 10, 20 or 100 for that matter. And then came along the big “C” and flipped the script.

Sometimes life seems so unfair it’s hard to imagine that things will ever get better, but every day brings another chance to make new choices and go forward. Listen to the wisdom deep within you and have faith that tomorrow will bring you closer to the answers don’t wait for someone else to encourage or inspire you. Inspire and encourage yourself, believe that you have the power, the nerve, and the audacity to make things change. You will know instinctively through the grace of GOD what to do. Keep your faith, especially in God and yourself! Remember there is a saying that says "What lies behind us and what lies before us are tiny matters compared to what lies within us."

The lyrics to one of my favorite gospel songs "Encourage Yourself" by Donald Lawrence and the Tri City Singers say:

Sometimes you have to encourage yourself.
Sometimes you have to speak victory during the test.
No matter how you feel speak the words you will be healed.
Speak over yourself encourage yourself in the lord.
The pressure is all around but God is present help.
The enemy created walls but remember giants they do fall.
Speak over yourself encourage yourself in the lord.
As I minister to you oh I minister to myself.
Life can hurt you sooo till you feel there's nothing left.
No matter how you feel speak the word and you will be healed.
Speak over yourself encourage yourself in the lord.

Supporting the fighters, admiring the survivors, honoring the taken, and never, ever giving up hope! It’s the GOD in me!

Sunday, September 20, 2009

Not only surviving, but Living!

Ovarian Cancer snuck into my life with illusive persistence. At the time of my diagnosis I had already endured months of pain and anxiety. My relationships were changing and my emotions were in a constant state of turmoil. It is little wonder that this disease is sometimes called the silent killer. My diagnosis came three days after I had lost my dear beloved Auntie Nora. My Libra sister, I was born two days after her birthday on Oct. 12. Since I had lost my parents, my mother in 1995 and my father in 1999, I could always count on her for support and advice. She always held a very special place in my heart. Devastated by her death I was contemplating putting off the surgery until after her funeral but on the advice of my doctor, trusted family members and friends I decided to have the surgery. So on March 17, 2006 my left ovary, fallopian tube, omentum and appendix were removed.
When I woke up from sugary, I was surrounded by my husband, three of my cousins, a very dear friend and my doctor. The pain in their eyes was so evident. The doctor had sent my tumor to pathology but he was already pretty sure it was cancer. My God I was face-to-face with ovarian cancer! The next four months were tough for me and everybody around me. There is nothing good I can say about chemotherapy, it sucked! My chemotherapy regime was very aggressive and I needed help from my mother-in-law and aunt. So they came from Cleveland, Ohio and Augusta, Georgia to stay with us for a while. I had three twenty-one day cycles of the worst chemo drugs imaginable (Etopiside, Bleomycin and Cisplatin). I was very sick from the chemotherapy. All of my hair fell out and I always nauseous and tired.
Now, three years later I am the happiest I have ever been in my life; the happiest I have ever been with my inner self. Sure, I still have some really bad days. Days when I fear getting sick again and days when I feel that my friends have no burdens of their own. I know I have climbed mountains and everyday gets a bit easier. I continue to move further and further away from those horrible days three years ago. I realize how truly blessed we all are to have life. I realize how lucky I am to be in this world, to have my strong, supportive, and sometimes loving family (LOL) and so many old and new totally amazing friends.